COPPAR collects patients data from multiplet aspects through surveys, interviews, and clinical physician assessments. Below is a breif summary of COPPAR data instruments
General PRO Survey
- 8‐ITEM DEPRESSION PATIENT HEALTH QUESTIONNAIRE (PHQ‐8) FOR EHIS WAVE II
- Anxity Short Form (PROMIS)
- European quality of life – 5D (EuroQoL-5D)
- Functional assessment of Clinic Illness Therapy-Fatigue (FACIT-F V4)
- SF-12 Health Survey/Physical Activity
Subjects: All patients
Methods: Patient Self-responded Survey
Survey Instruments:
PsA PRO Survey
- ROUTINE ASSESSMENT OF PATIENT INDEX DATA (RAPID3)
- The EULAR Psoriatic Arthritis Impact of Disease (PsAID9)
- PATIENT GLOBAL JOINT ASSESSMENT
- PATIENT GLOBAL ASSESSMENT-PSORIATIC ARTHRITIS
- Bath Ankylosing Spondylitis Disease Activity Index (BASDAI)
- DERMATOLOGY LIFE QUALITY INDEX (DLQI)
- PATIENT SKIN GLOBAL ASSESSMENT
- ITCH INTENSITY ASSESSMENT
- COMPREHENSIVE ASSESSMENT OF THE PSORIASIS PATIENT (CAPP)
Subjects: PsA patients
Methods: Patient Self-responded Survey
Survey Instruments:
PsO PRO Survey
- Dermatology Life Quality Index (DLQI)
- PATIENT SKIN GLOBAL ASSESSMENT
- ITCH INTENSITY ASSESSMENT
- COMPREHENSIVE ASSESSMENT OF THE PSORIASIS PATIENT (CAPP)
Subjects: PsO patients
Methods: Patient Self-responded Survey
Survey Instruments:
COVID-19 PRO Survey
- COVID infection status
- Vaccination status
- Perception of risks of getting COVID infection
Subjects: All patients
Methods: Patient Self-responded Survey
What we collect:
Patient Interview
- Patient demographics including gender, marital status, race, and level of education
- History of PsA/PsO
- Current/past medication
- Current Phototherapy
- General health status on comorbidities
- Health care resource use, including ED, hospitaolization, nursing home, surgery, home health care
- Alcohol consumption and smoking habits
Subjects: All patients
Methods: Researcher administrated interview
What we collect:
Physician Questionnaire
- Disease duration and affected area
- Medication change
- Skin Static Physician Global Psoriasis (sPGA)
- Psoriasis Area and Severity Index (PASI)
- Body Surface Area (%)of the patient that is involved with psoriasis (BSA)
- Scalp Physician Global Assessment (ScPGA)
- Palmoplantar Psoriasis Physician Global Assessment (PPPGA)
- Static Physician Global Assessment of Genitalia (SPGAG)
- Comprehensive assessment of the psoriasis patient (CAPP) Inverse (Intertriginous) PsO Assessment
- Modification of the nail psoriasis severity index (Modified NAPSI)
Subjects: All patients
Methods: Assessed and filled out by rheumatologlists/dermatologists
What we collect:
- Classification Criteria for Psoriatic Arthritis (CASPAR)
- LEEDS Enthesitis Index (LEI) Joint Assessment
- Dactylitis Assessment
- 68/66 Joint Count
PsA patients only assessments